Take a deep breath....

Cause thats what Klara did today...

Finally some news and something (I want) to blog about...

Today Klara was Extubated and she did good.  She started breathing on her own fairly quickly w/ minimal support.  They (nurses) were impressed.  Since then (its been about 10 hours) she has had a few Desaturations but thats really all.  Now, Klara has thrown a few curveballs at us before so, we just need to keep the good vibes going her way so that she continues on this path and that she doesnt get tired again.  Not a pessimist, just trying to stay grounded.  She still has alot of HUGE obstacles but this is a BIG step for LITTLE k. 

Additionally her bones are showing some promising signs, so much so the Ortho Doc removed her Pavlic harnes (we call it the paratrooper suit).  So hopefully that rules out Major Bone disorders.

On her primary diagnosis...well they have done a BUNCH of testing but still no definitive results.  They have started to remove some things off the table, but right now still nothing is for sure.

They are planning to do an EMG test and a 3rd muscle ultra sound.  We are also still waiting for the results of the muscle biopsy. 

She is fighting every step of the way..she's a stubborn pedersen (wonder where she gets that from).