We are home and slowing reemerging into the real world. Mom and Klara didn't leave the house for the first 10 days after Klara came home. Finally, Emily decided she had enough and took a trip to Target with Lily and Klara - Just the 3 of them. She packed up all of Klara's equipment and loaded the kids into the car and off she went. If you can imagine - Emily pushing Klara's stroller with one hand, holding Lily in the other arm and holding a target basket. All for the price of sanity. It was worth it.
We have been home for a little over 2 weeks and everyone is doing great. Klara is continueing to gain weight -she weighs in at approximately 8 pounds. We find out exactly how much tomorrow. She is finally getting too big for her newborn clothes. She is smiling and cooing, kicking her legs, and rolling to her sides. We are still trying to get her to lift her head up off of the floor when she is on her tummy - but she prefers to scream. She isn't a fan of tummy time.
We had a follow up at CHOP and her docs were very happy with how her lungs sound and how much weight she had gained. She recovered very well from the rhinovirus and pneumonia. We have our next appt mid July and they will evaluate her and plan her next admission for NG trials.
We are still waiting for results from the most recent tests being done by her neurologist. We should hopefully hear something in the next 2 weeks.
Lily loves having her baby sister home. She loves to sing her songs and read her stories. Life is finally becoming normal.
Wow Klara! You are doing sooo great... I had the pleasure to visit over the Memorial Day weekend and was amazed at your progress and how much you have grown. What a cutie you are!
ReplyDeleteBrian
P.S. Lilly, I had a blast sharing a run with you and pushing you in your cool jog stroller. Let's do it again soon!
Darren - This was wonderful to read! The girls look sooooo amazing together. Lily is getting so damn big, it's incredible!
ReplyDeleteCall me when time allows and we'll catch up.