Good Days and Bad...

Hard to describe whats a good day or a bad day and right now every day is both... 

Yesterday:  Before discharging mom, we spend the day with Klara.  If you remember the previous night we had her out for 4+ hours and she tolerated well, and we even bathed her.  I guess that took a lot out of her, cause she was not happy yesterday when we had her out of her isolette.  She continually desatted...so we couldnt hold her much.  We left the hospital (which was incredibly tough) but was very nice for Mom to come home...Lily went nutz!!!! Was so happy to be home with mom and dad.

Today (Tuesday, February 2, 2010):  We called the NICU in the morning to find that Klara did not have that good of a night.  Her Desats continued along with a drop in heart rate requiring her to go back on oxygen.  They do not fear any issues with her respiratory or cardiac organs, but are relating it to her inability to manage her secretions.  As i type this, mom is holding her next to me while she is getting 21 cc's of food (remember, she started at 1 cc 4 days ago).  Hopefully by the days end they will be removing her IV b/c she is doing so well with her food. 

Update on the transport to CHOP:  apparently b/c this is a non emergent transport, this can happen at any time.  The CHOP transport team runs 24/7 and we may not even know when they are in route...so we are flying by the seat of our pants until we get her there. 

In case emily or I ever forget to say thank you, we want to do it now.  We couldnt do this w/o all of the love and support we are receiving from our Friends and Famly.